Dan and Ashley write; I send; we all pray!

thursday, february 4, 2010

failblog- but not entirely
The food trial failed. My drains collected a lot more than usual, even when my eating was minimal. Perspective: last night, one drain put out 75mL in 8 hours; before the food trial, I was getting 40-50 combined for the whole day. Darn pancreas.
Now I'm back to NPO except water when I'm thirsty. I will have to go home on TPN; but the hidden gem of that sentence is that I'm going home. Tomorrow. That is sweet.
A few weeks ago, I had joked with Ashley that I had better go home before one extremely pregnant resident had her baby. She had her baby today. Fail.
So here's basically what life will look like at home (not my 'home' home, but my parents' home in Lodi--it's different once you're married):
TPN at night
Blood sugar checks about 4x/day
Wound vac changes 3x/week
PICC line dressing change once a week
NPO (no food)
Thankfully, no more IV meds
Weekly visits with the surgeon at Stanford (at least at first- frequency will probably go down after a while)

While I'm not really happy to be back on TPN, I know my pancreas isn't quite ready for food yet. Hopefully, the drains will dry up quickly like they did before when I was on TPN, and I won't have to be on it for too long. I'm not afraid of TPN really; I just want everything that is wrong to be righted, and I think the best way to do that is with TPN. Though it is far less fun.

This drain failure is a step back, but I am taking steps forward. It has been a long ordeal; it will be a little longer. Many of you have prayed for me; I would appreciate a continuation of that. I look forward to the day when I don't have to worry about my pancreas anymore. Until then...

Prayer requests:
Quick drying of the drains
Good healing of the wound
No return to the hospital (except for planned visits with the surgeon)
Ability to go home to La Mirada with Ashley



wednesday, february 3, 2010

Aggravation
When I was little, my mom and grandma used to play Aggravation with my brother and I. It's that marble game that you must go around and get your marbles home without getting knocked off by other players. Just when you think you're about to win, someone comes up and kicks you back to the beginning. The only word to describe the game: aggravating.

That is how this hospital stay is beginning to feel.

After such great news yesterday, Dan and I felt as though maybe we were really getting to the end of this long haul. Dan has been eating very small amounts since last night and the drains looked great...until 2 o'clock. While the last shift's 8-hr total was 12 cc, one drain put out 30 cc in two and a half hours. Shoot. The nurse is paging the doctor to see what he wants to do. Does this increase mean the end of the food trial? Could this be just a short spike before things get better? Will this delay going home? After finally being able to eat (due to very low drain output), Dan is frustrated to be faced with NPO status again.

We are waiting for the doctor's opinion before getting too gloomy, but we're pretty bummed.
As far as we know, if Dan fails this food trial, he will be sent home on Friday on TPN. Dan has come to terms with that and just wants to get home. I suppose we just don't want the disappointment of not being able to eat to be compounded by the disappointment of not going home on Friday. Going home with TPN is not the end of the world, but it will get old pretty fast. I'm just unsure how long Dan would have to be on TPN before doing another food trial. In fact, we are just unsure of a lot.

On a good note, I'm back with Dan. I fly out of Sacramento of Sunday night, so please pray he is home by then! I'll be back again on Tuesday night. I'll be an airport pro in no time. It's wonderful to be back in the same place, I just that same place could be not the hospital!

Prayer requests:
* Drain stoppage...no more increase!
* Wisdom for the doctors
* Continued wound healing
* Surprise "passing grade" in the food trial
* Home on Friday! (one month is enough)
* Joy through the frustration
* My ability to get my homework done while away from school
* Good news....great news...soon

Praises:
* Dan's eating
* Safe travels
* Wound healing (the wound vac change showed great improvement today!)
* The last six M&Ms in my bag were blue, green, yellow, orange, red, brown...on accident :)

Psalm 146
Praise the Lord.
Praise the Lord, O my soul.
I will praise the Lord all my life;
I will sing praise to my God as long as I live.
Do not put your trust in princes,
in mortal men, who cannot save.
When their spirit departs, they return to the ground;
on that very day their plans come to nothing.
Blessed is he whose help is the God of Jacob,
whose hope is in the Lord his God,
the Maker of heaven and earth,
the sea, and everything in them—
the Lord, who remains faithful forever.
He upholds the cause of the oppressed
and gives food to the hungry.
The Lord sets prisoners free,
the Lord gives sight to the blind,
the Lord lifts up those who are bowed down,
the Lord loves the righteous.
The Lord watches over the alien
and sustains the fatherless and the widow,
but he frustrates the ways of the wicked.
The Lord reigns forever,
your God, O Zion, for all generations.
Praise the Lord.